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Until everyone understands
The Newlife Foundation provides essential equipment to terminally ill and disabled children under 19 years who live in the UK. Grants are provided for items such as wheelchairs, beds, communication aids, and therapy equipment. Initially, telephone (0800-902-0095) and discuss your child's needs with a Newlife Nurse. If eligible, an application form can be downloaded from their website. A Therapist report is required and the grants are not means tested.
The family fund offers grants to families raising a disabled child aged 17 and under. The grants can be for a wide range of things from sensory equipment, computers/I pads, furniture, clothes, domestic appliances or holidays – things that will help improve the lives of disabled children and their families. This grant can be applied for once a year – the first award being of the highest value.
Contact A family
Contact a Family is the only national charity that exists to support the families of disabled children whatever their condition or disability. They provide help and advice with benefits, education, and have a great resource library.
Cerebra is a unique charity set up to help improve the lives of children with brain related conditions through research, education and directly supporting the children and their carers.
Cerebra can offer grants for specialist equipment, sensory equipment etc. They also have a toy library. They offer an amazing sleep counselling service for those with bed time struggles. They often run courses / talks or arrange days out for disabled children.
It’s good to get on their mailing list to find out what’s coming up in your area.
Caudwell Children provides funding for children under 19 years who have a disability or chronic illness. They have previously funded specialist equipment for mobility (including trikes), computer access, sensory needs and medical items such as nebulisers and monitors. The charity also provides for the cost of specific therapies and treatments. This includes treatment/surgery not available in the UK and Autistic children's therapies.
To apply complete the on-line application form. Financial information is required as funding is only given to to families whose income is less than £45,000 gross a year.
Disability Living Allowance (DLA)
Disability Living Allowance (DLA) for children may help with the extra costs of looking after a child who:
- is under 16
- has difficulties walking or needs more looking after than a child of the same age who doesn’t have a disability
Telephone: 0345 712 3456 (Monday to Friday, 8am to 6pm)
Textphone: 0345 722 4433
Blue Badge Scheme
The Blue Badge scheme helps you park closer to your destination if you’re disabled. For information about the Blue Badge, who is eligible and how to apply please visit:
Bristol Register Of Disabled Children
To add your child to the disabled children’s register contact:
Disabled Children's Services,
5 Knowle West Health Park,
Tel: 0117 903 8250
Once on the register you will receive a pink card. This card is commonly used by parents/carers as proof of disability and in some instances can allow you to access certain attractions at reduced costs, or enable a carer to attend for free when supporting the named child.
You might qualify for Carer’s Allowance if you spend at least 35 hours a week caring for a child who gets the middle or highest care rate of DLA and earn less than £102 a week (after taxes, care costs while you’re at work and 50% of what you pay into your pension)
Carers Allowance is a taxable benefit and may affect your entitlement to other benefits and must be declared when claiming tax credits.